Hurray I'm One

Hurray I'm One

Friday, June 28, 2013

My baby isn't a baby any more

I can not believe how fast the last 3 years have flown by. Ami is no longer a baby or a toddler, he's a kid. He learns so many new things everyday.  He is very smart.  I wouldn't be surprised at all if he is reading when he's 4. I hope his love for learning continues for a long time.  This kid is going places.
I'm sure you all know that he is going to be a big brother.  He is very excited about it. He was dead on when he told us the baby was a sister.  Josh still isn't too keen on having a girl but there isn't a whole lot we can do about it. I emailed the specialist yesterday asking her a bunch of questions. I asked if this baby has NEHI as well, will she present the same way Ami did. I also asked if there are any special things we should do once she is born. I asked if she had any suggestions for nursing since that was such a huge issue for Ami. I got a long email back, but the just of it was they have no idea.  They now believe NEHI is an autosomal dominant gene. Which means that it is a dominat gene carried by one parent.  This means that each child has a 50/50  chance of having the disease.  She also told me that every child is different so there is no way of knowing how she might present with the disease. She may have a more severe case or a more mild one. She told me that if we notice rapid breathing or retracting we should start testing but not automatically assume she has NEHI. She said she wants all of the same tests ran just not the lung biopsy. That's soooooo many things to test for. That's a lot of blood draws. That's putting her under for bronchial lavages, and CT scans. It's a lot to watch a little tiny baby go through. I'm not excited at all. She also suggested having more frequent weight checks. I'm having a lot of anxiety about it all. I want so much for her to be healthy.
We are going to be staying in our house for a few more years. When Ami was in the hospital so much, and having all of the tests done, we had to live off our credit cards. We also got sent to collections a lot because of the enormous bills. All of that tanked our credit. We are finally seeing some light at the end of the tunnel, and hope to have our credit back in 3 years or so. 
Josh got a "promotion" at work and really seems to be enjoying it. He is now in charge of all the ordering they have there. He's pretty much second in comand. He's starting to understand the stresses of being the boss man.
I am planning on going back to school for spring semester.  I still very much want to open up my own center. I want to get a degree in business management and marketing.  I have worked at enough centers to know that if you don't have a good grasp on the business side of daycare then you aren't going to make it very far.
Life is busy and crazy but it goes on.

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