Ami update

I'm sure everyone has heard by now but Ami did very well with his lung biopsy. They took a thumb nail sized piece out of his lower right lung. He has about an inch incision, and it looks like it is healing well. The smears and tests that they ran on the biopsy and the lavage so far hasn't grown anything. We will get final results around June 5th or 6th. The pulmonologist, Dr. Rivera, didn't think that it was a severe form of ILD since nothing was growing and it didn't look like a specific type. She said that it looked like a lot of inflammation so she put him on a 10 day round of oral steroid called prednisolone. At first the steroid made him shaky but he seems to be handling it well. His incision doesn't seem to bother him either. He was only on pain meds the day of the surgery and half of the following day. We got some advice on ways to increase his calories so hopefully he can gain some weight. He is eating a lot more then he did before the surgery. We have to go back to St. Louis the beginning of July for a lung function test. He will have to be  put under just to ease the stress of the procedure. Ami did get approved for Medicaid so that will help greatly from here on out with medical expenses. Children's Hospital in St. Louis was a wonderful place. All of the nurses and doctors were great. The facility was nice, very child orientated. People were very helpful and nice. My only complaint is there you most likely will have a roommate, unless you are under quarantine, and discharge took a lot longer then it needed to. I hope this will be our last hospital stay for a while, and all of the testing is over.