Life is Good

Today life is good.

     Tuesday I found out Ami is finally in the 5% in weight! That is huge for him. For a year now he has been in less than the 3%.

     Today I found out that the ILD specialist has accepted his case. She hasn't gotten all of his info yet, and when she does we'll set up a time to go and see her. Her name is Dr. Young and she in at Vanderbilt, which is in Nashville. She is very interested by just the little she has read, and then from what I have told her. She did explain his biopsy to me. She basically said that it's junk. From the THREE slides she has gotten so far; the biopsy wasn't taken correctly, and then it wasn't sliced and put on the slides correct either. She is hoping more slides come in. She explained the correct way to do all of it, and I know that is not what they did.  Nice to know it was a waste, but you live and learn. She didn't have enough info yet to be able to give a more definite answer, but she does see some red flags. It will be an office visit. If she wants more tests done she typically has them done at home, and the results faxed to her.If she tells me Ami has NEHI, awesome. If she tells me Ami doesn't have NEHI, awesome. I just want to know that we are treating and managing this disease the correct way.

I hope tomorrow life is still good................